Van Hollen, Murphy, Cassidy introduce legislation to improve neurological health research

Van Hollen, Murphy, Cassidy introduce legislation to improve neurological health research

September 21 2022

Today, US Senators Chris Van Hollen (D-Marvey), Chris Murphy (D-Conn.), and Bill Cassidy, (R-Los Angeles) introduced legislation to reauthorize the Centers for Disease Control and Prevention (CDC) national case-control system program. Neurology (NNCSS), which collects data that collects privacy-protected data on neurological conditions to inform research and help develop better treatments and treatments.

Specifically, the legislation would reauthorize the NNCSS for another five years and increase funding to $10 million beginning in fiscal year 23 and up to $20 million by fiscal year 26. The reauthorization would allow the program to complete its current work on multiple sclerosis and Parkinson’s disease and expand to neurological conditions other.

For Americans with neurological conditions, such as Parkinson’s disease and MS, good data is key to developing innovative treatments and treatments. That’s why it is so important that we fully fund the NNCSS program for another five years to expand our data collection and research capabilities. This legislation will help the millions of patients — and families — affected by these conditions each year, as we seek to enhance our responses and available treatments for neurological conditions,” Senator Van Hollen said.

“The NNCSS is an important program that helps us better understand neurological conditions such as multiple sclerosis and Parkinson’s disease, each of which affect more than one million Americans and their families. Their research is key to developing more effective treatments and ultimately finding a cure for these horrific diseases. We must continue to support their life-saving work,” Senator Murphy said.

“Hope for a cure comes through advances in knowledge. Let’s create that hope” Senator Cassidy said. “This bill supports research into treatments and treatments while protecting patients’ privacy.”

“Treating and preventing Parkinson’s disease means providing researchers with the most robust information about the pathogenesis and potential triggers found here in the United States. The National Neurological Surveillance System is a world-class engine that is integral to the treatment of Parkinson’s disease and other neurological conditions,” Ted Thompson, JD, senior vice president of the Michael J. Fox Foundation for Parkinson’s Disease Research. “On behalf of the Parkinson’s community, we are calling on Congress to reauthorize the NNCSS so that the best and smartest people in the world can access the data and information they need to one day treat Parkinson’s disease. Parkinson’s disease costs the United States more than $52 billion each year, and that will grow to $80 billion.” At least for the next 15 years. Investing $10 million in fiscal year 2023 in NNCSS to eventually be able to offset billions of dollars in sponsorship cost is a smart investment and I hope Congress will support it.”

“Brain health is critical to an individual’s health. One of the main ways policy makers can improve brain health is to collect more data on the incidence and prevalence of neurological diseases,” Orly Avitzer, MD, MBA, FAAN, president of the American Academy of Neurology.. “The National Neurological Condition Surveillance System is beginning to provide important insights into Parkinson’s disease and multiple sclerosis. This legislation will ensure that this important project continues and has the resources to expand more neurological conditions over time. Neurological diseases cost the United States more than $600 billion each year — we We need investments like NNCSS to provide basic data to researchers to help improve brain health.”

“With a new study setting the annual economic burden of multiple sclerosis (MS) at $85.4 billion, it is more important than ever to provide researchers with accurate and up-to-date data to access answers and a cure for MS,” said Bari Talente, executive vice president of advocacy and health care access at the National MS Society. “The National Neurological Condition Surveillance System is set up to provide important information to researchers working to end MS and other neurodegenerative diseases. MS activists urge Congress to support reauthorization and $10 million in federal funding for the NNCSS fiscal year 23.”

This legislation has been endorsed by the American Academy of Neurology, the National Multiple Sclerosis Society, and the Michael J. Fox Foundation.

Invoice text available over here.

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